Impact of Educational Program for Adolescents and Young Adults with Sickle Cell diseases on their knowledge, Perception, and Self-Care

Abstract

Self-Management Program(SMP) has a significant positive effect on self-care of a patient with chronic disease.
Improving self-care is the most essential stepsto control several complications. Aim: to assessthe influence
of applying educational program onknowledge, perception, and self-care of adolescent and early adulthood
individual suffering from Sickle Cell Diseases ( SCD). Design of Quasi-experiment was implemented in this
study. The current research study was accomplished in the Center of Genetic Blood DiseasesinQatif Central
Hospital in the East Area of Saudi Arabian. Subjects: Apurposivesample composed of 82 early adulthood
individual suffering from SCD. Their ages were between 14-20years. Tools: Interview sheet, itincluded
three parts; socio-demographic data,SCDassessment sheetandtheknowledge assessment sheet. Tool for
assessment of self-care management is The Adolescent and young adult Independence Checklist (AACSCD). Results:Theresult of the current study mentioned thataround 15 % of patients were receiving special
educational services, and more than 80% reported that the SCD interfered with their school achievement.
Also, most of them (79.3%) had no wish for complementing theSCD treatment before the program while
after intervention two-third of themmentioned that they will completeSCD treatment.The difference
was statistical significant regarding patients self- care managementprior and after three months from the
program, P< 0.01.Conclusion:Results support the necessity for Self-Management Program to improve selfcare activities in adolescent and early adulthood individual suffering fromSCD.Recommendations: there are
an obvious needsto implement those educational programs in ordered to increase awareness and improve
self-careamongearly adulthood suffering fromSCD.