Is there any Burden or Impaired Quality of Life of Caregivers of Patients with HIV/AIDS?
Introduction: HIV has become a chronic illness like Diabetes and Chronic Kidney disease. Chronic diseases
not only affect the lives of those suffering from the illness but also affect the lives of family members who
take care for them.
(iv) To assess burden of caregivers of patients with HIV/AIDS
(v) To assess quality of life of caregivers of patients with HIV/AIDS
(vi) To associate burden with quality of life of caregivers
Methodology: A sample of 100 caregivers was selected using convenient sampling method. Research
variables under study were burden and quality of life of caregiver. The tool used for data collection
consisted of semi-structured questionnaire for socio-demographic characteristics of patient and caregiver
and standardized tools namely, Zarit Burden Interview and WHO Quality of Life – BREF scale.
Results: Majority (35%) of the caregivers reported to have mild to moderate burden. The mean burden score
was 37.37+14.61SD. In quality of life, social domain showed a maximum score of 61.08+15.41SD and
psychological domain a minimum score of 55.39+14.21SD.
There was significant strong negative correlation between mean burden score and the scores of four domains
of quality of life. The result indicated that the caregivers who reported higher degree of burden had reduced
quality of life.
Conclusion: The study revealed that there is significant strong negative correlation between burden and
quality of life of the caregivers. Care giving role can be enhanced through formal education programme on
HIV/AIDS care giving and home service