The Effect of Family-Centered Empowerment Model (FCEM) on Improving Family Functioning of Children Diagnosed with Glucose-6-Phosphate Dehydrogenase (G6PD) Deficiency
Keywords:Glucose-6-phosphate dehydrogenase deficiency (G6PD) or favism; Family self-efficacy; Familycentered empowerment model
Introduction and Aim: Caring for child with glucose-6-phosphate dehydrogenase (G6PD) deficiency
causes a lot of stress for parents. Family-centered empowerment model is one of the educational programs.
Materials and Methods: A controlled clinical trial was conducted on parents of children with G6PD
deficiency that was referred to Iran Hospital of Iranshahr. The participants were randomly divided into
an experimental group (n = 30) and a control group (n = 30). To collect the data, the Family Assessment
Device (FAD) was completed by the children’s parents before and after the intervention. The FAD scales
demonstrated fairly good internal consistency (the Cronbach’s alpha of the questionnaire ranged from 0.72
to 0.92 and its validity and reliability were 0.76 to 0.66 indicating the acceptable values. The family-centered
empowerment model was implemented during four sessions. One month after the intervention, the subjects
completed the questionnaire again and finally the data were analyzed by the statistical tests.
Results: Both the paired and independent sample t-tests were used for all statistical analyses at a significance
level of P>0.05. Also, both the chi-square test and the Fisher’s exact test were used to compare qualitative
variables in two groups. The mean FAD scores of the intervention group were significantly decreased from
152/4 to 1.120 (P<0.001), while no statistically significant difference was observed in the mean FAD scores
for controls before and after the intervention. Furthermore, the mean FAD scores in the intervention group
were decreased to 32.3 units and up to 0.6 unit in the controls, and the difference between two groups was
statistically significant (P<0.001).
Conclusion: According to the results obtained, the implementation of family-centered empowerment model
has a significant effect on improving the family functioning of children diagnosed with G6PD deficiency.
Therefore, it is recommended to implement in health centers in order to prevent recurrent attacks of this
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